Out of the woods!

Shoo, Avery is better! She is back to normal and all the symptoms that she seemed to be having are back to where they were prior to the increase in the Lamictal. She is still somewhat clumsy and stumbling and hyperventilating but not anything like she was this weekend. She is smiling and over all my happy baby again!
Life is good!

UPDATE: Avery's neurologist called, she is starting Tegretol tomorrow morning. She had several vacant spells today. She had 2 while her P.T. was here. Hopefully this medicine wont send her into a downward spiral again.

This is the life!

Rub-a-dub-dub

Its Avery in the tub!



(look how long her hair is getting!)

Sad day

I am having a HORRIBLE day! I am struggling with figuring out whether or not the little girl in front of me is really her or a mirage. I am praying that the demon who has invaded my baby is just a side effect of the seizure medicine and not a guest who is here to stay. She is completely spastic, hyperventilating, anxious, stressed, clumsy and all around CRAZY!

She is currently sitting in her bumbo, blowing raspberries WHILE hyperventing, watching ELMO. This was a last resort...I'm at a loss, putting her to bed is not going to happen anytime soon--she almost seems possessed...pupils huge, shaking, unable to be held, arching, thrashing....

sweet babies!

Yesterday marked the first day of watching the triplets! Avery is oblivious to them unless they happen to be crying! She was sitting with me yesterday and Claire was on the floor. I placed Avery down with her and they looked so sweet together! Hopefully Avery will enjoy having the babies around. :)

10 year reunion

I had my 10 year high school reunion last night. Thad stayed home with the kids(and didn't want to miss the Auburn/LSU game). My best friend left her husband at home too. Time sure does fly!

Me, BFF Charlene, Shannon...we have all been friends since 5th grade!

New pictures

Sorry its been a while since I posted new pictures. My camera battery died and I couldn't remember to buy a new one!

Thad is a bit behind on the mowing of the grass...Avery seemed to disappear!

I also FINALLY got my hair cut. It had been almost a year! I am such a short hair kinda girl...

weight!

Whose little girl who was teetering between 24 and 25 lbs hit 28 pounds today??? That would be my chunky monkey! Thank God for Carnation instant breakfast!!!

that would be 16.1 BMI---47th percentile!

UGH!

Avery started her seizure medicine on Sunday morning. So far it seems to be fine but her behavior has changed some. Last night I put her to bed like I always do. She needs both of her bunny loveys, paci and her blanket. She rolls over towards the wall and closes her eyes. I knew she was tired and thought that this would be it from her until morning. WRONG!!!

About 15 minutes later as I was putting Cole to bed, I hear her yell. I go to open the door and I cant. Something is blocking it. Yep, that something was Avery! She fell out of her crib!! She has never stood up in her crib so I usually leave the side down. Well I guess she stood up and leaned forward and fell right out!

I'm glad I decided to check on her. Normally once she is in bed, even if she yells I don't go and check on her, she sometimes just needs time to unwind. Poor baby was wandering around her pitch black room for who knows how long!

A Cole funny....

One day he is probably going to kill me for this but it cracked me up!

He was on the computer and got up quickly and ran to the potty. I went into the bathroom to check on him and I see him standing looking into the mirror at his pee-pee. He turned towards me and said, "Mom, it itches! Does it got bugs on it??" It was hilarious.

Boys are quite interesting!

Guestbook

hey, I added a guestbook at the bottom of the page. Feel free to sign so I know who is stopping by!

WaR eAgLe

Better late than never, right?

Sad but happy

Thad's aunt, Vivian, passed away this past Friday after a long fought battle with cancer. The services were held on Sunday and we got to see a ton of people that we haven't seen in ages. It was not the best reason to gather but it was great to see everyone. The thing that I kept hearing over and over again was, "Geri sent me Avery's website, so we check it often to see how everyone is doing. We've been praying for ya'll."

It is a great feeling to know that Avery's struggles have opened so many peoples eyes to Rett Syndrome. Hopefully this blog will continue to raise awareness.

This picture is not related to the post, just posted because she is so stinkin' cute! She loves the bumbo seat and will find a way to sit in even if it means backwards with her legs dangling. She would stay in this position forever!

EM OOO

Julia climbed onto the couch with Avery this morning and excitedly proclaimed "ELMO!" to which Avery replied, "EMMOOO"!!!!!

Hurricane Gustav

We decided to venture to Gulf Shores to check out the water. There was minimal damage along the way, mostly downed tree limbs.

The gulf is angry. There are big waves and wind but we got lucky. Here are some pictures from our trip.