Sunday, February 22, 2009

Dear Friends and Family,

Many of you have always asked what you can do to help with our daughter who is suffering from Rett Syndrome. I need you to consider coming up with a way to participate with us in Dress Up 2 Cure for Team Avery.

Can you organize a block garage sale and donate part of the proceeds?
Can you hold a dinner at church?
Can we raffle off your services?
Can your business hold a Casual/Dress Down Day?
Can you send an email?
Can you post something on your blog? (widgets available ---->)
Can your daughter's girl scout troop get invovled?

We are confident that research funding is the only thing standing between Avery and treatment. We really need your help and would be honored to have you on our team this year. Check out our team page at http://www.dressup2cure.org/teamavery. Then click, "JOIN TEAM AVERY" to get the ball rolling.

Thank you!
Carrie, Thad, Cole and Avery

Tuesday, February 17, 2009

Dynavox Eyemax

Today a rep from Dynavox came and did an evaluation on Avery with their new eye gaze system called Eyemax. Avery did so awesome! She quickly made the connection between where she was looking and the things that were happening on the screen. She was proud of herself!

We are going to start the process of getting one for Avery!(in pink of course!!!) I can only imagine the possibilities that having a concrete form of communicating will have on her and living day to day.

Tuesday, February 10, 2009

Two-steppin'


video

(First, sorry it is sideways! I cant figure out how to fix it!)

Avery feels so good since we got her seizures under control and she recovered from surgery. Here she is "dancing" to Elmo. Such a happy baby!