Sleeping beauty????

Look at the rats nest of hair! :)

Little pink riding hood

Little model

pure love!

Avery has and always will be completely smitten with her daddy! She couldn't be anymore in love :)

Recycle

When Avery was a baby, her Mama G made her this adorable outfit to wear for Auburn games. She quickly outgrew it, but it was tucked away. Last weekend I was looking for something for her to wear to watch the game and came across the top that used to be a dress. It still fits perfectly but now as a top! :)

Rett Syndrome Awareness Month

October is Rett Syndrome Awareness Month! On Feb. 2007 Rett Syndrome was REVERSED in a genetic mouse model. Our girls wait in silence. Support Rett Research - you can be part of this miracle! http://www.girlpower2cure.org/avery

avery Cat

Avery gave new meaning to the name "Avery Cat" today. This is how I found her this morning, all curled up like a cat in her chair!

Proclamation

Tomorrow, Avery, Thad and I will be traveling to Montgomery to witness Governor Riley sign a proclamation deeming October Rett Syndrome Awareness. We are honored to have been invited and even happier that we will also be on the Montgomery local news tomorrow morning at 11:00 central time. If you would like to watch the live feed you can see it at: http://www.wsfa.com/

Pictures to follow!

superfriends

Lately we have tried to stress to Cole that Avery is special and he needs to protect and help her. Tonight while in character (like he is most nights!), he decided that Avery needed to be "supergirl". I think she had fun strutting the house in his P.J's!

meet the newest conehead!

We went today and got hooked up for a 24 hour ambulatory EEG with video. She has had some "spells" that I am assuming are from her holding her breath but better safe than sorry! We have had to re wrap her head 3 times---she keeps bumping her head and knocking the gauze off! Stinker :)

First day of preschool!

Its official---Avery is now a big girl! All the worrying and fretting for nothing. I got her out of her wheelchair and she was immediately befriend by a sweet little girl that was hugging her and rubbing her back :) She was smiling and didn't seem the least bit anxious. I will post later with an update when she gets home from school!

(Before School)

Typical Avery, fell asleep before we were even out of the neighborhood!

*****UPDATED PICS*****

Attempt #1 on computer

The stand for Avery's computer FINALLY came yesterday. We set it up and had her calibrate her eyes this morning. I started with a very simple task...choosing which food item. I pressed the "I want" button a couple of times and she caught on immediately. She was pretty consistent with saying "I want" before making a choice. She got tired of it quickly but Rome wasn't built in a day and we will keep working!

************For the record, Avery was getting whatever she asked for it is just outside the view of the camera! I was not torturing her!

Tooth Fairy visit

Cole lost ANOTHER tooth this weekend. He is looking quite funny with his toothless grin! :)

Vacation

We are home from a long weekend at the beach. Cole spent the whole time in the pool---he doesn't like the sand. Avery has decided that the pool isn't so bad. We would keep her inside until the pool was shaded and she loved it.

A nice woman let Avery borrow her float. It was perfect because she was in the pool but wasn't contained in a baby float. As soon as I got home I got on the internet and found one to buy.

Smitten

Can you tell who has their daddy completely wrapped around her finger!?!?

Snaggle tooth

Cole lost a tooth a couple of weeks ago and I'm just now posting a picture. Isn't he cute?!?!?

Family fun...

We spent yesterday afternoon at my aunt and uncles. It was wild :) The triplets are all over the place and it tends to overwhelm Avery but she was a trooper and seemed to enjoy herself.Julia is 5 months younger but seems so much BIGGER!

Joel(1 of the triplets)

Updates....

I just wanted to let those of you who follow this blog that everything is OK. Sorry it has been so long since I posted. I have been in a personal funk and haven't had the desire to post. Hopefully things will be better soon---

I promise to update later with pictures! :)

On a happy note, plan on seeing lots of video of Avery-doodle soon---her Dynavox EyeMax will be here today!!!!!!!!!!!

Catch up time!

Sorry to all my followers for going so long without a post. Life got in the way :)

The month in review:

My sweet baby boy turned 6 on May 4th...Thad's best friend and Cole's name sake, Trevor (Cole), bought him a little cake to celebrate his special day---he was very gracious but told me later that he really wanted a "super hero cake", I guess he thought that was his party! Sweet monkey!
We had his really party that weekend and he had a blast!
Kelly and Brooklyn came for a visit. It was so nice to spend time with them again---if only they lived closer. Kelly and I seem to always pickup where we left off like we see each other all the time. I'm hoping they will come visit again and this time bring Charlie!Last week we took a short trip to Birmingham to see Dr. Percy and Jane. I love going there...its nice for someone to tell you that you are doing all the right things. Avery has grown an inch but lost a pound. They didn't seem to concerned but it is something we will have to keep an eye on.

Bittersweet

The time has come and it leaves me feeling quite sad. Avery is aging out of Early Intervention next month. These women have come into our home on a weekly basis for more than the past year and a half. One in particular, Ms. Jessica, was Cole's DT when he was in EI so I am going to miss her a ton. They all promise to keep track of us and check in every now and then but it just wont be the same. They have all become a part of the family and they will all be missed dearly. Thanks ladies for loving my daughter and helping to push her to achieve even the smallest of goals.

Alisa, OT