Yesterday I got a package in the mail from Kelly and Brooklyn. Kelly had sent the "Rett Syndrome Handbook", coloring books for Cole, coloring book and paper and crayons for Avery, and 2 handy-dandy coloring straps(see picture)! We are so incredibly blessed to have them in our lives. Hopefully I can pay it forward to another mom of a Rett angel!
Hugs and kisses to you both!
Hugs and kisses to you both!
3 comments:
I hope you have MANY hours of fun coloring Avery!
I want to send one to Riley too, i need to get Erin's address - with the move that might be difficult!
Has she had a chance to use it yet? How fun!
Hello, I am a mom of a 4 year old with Rett and I saw your link on ClubRett. Avery is beautiful. My daughter's name is Lauren but she was almost an Avery. : ) I love that name! I would love to chat with you anytime. Lauren was dx at 28 months. We think she went through regression between 20-26 months. Since coming out of regression she has only made progress. With the therapies you have in place for Avery, I bet she will do the same. I am praying for you. I remember those first few weeks after we got the official word from the doctor...not fun! But it will get better. E-mail anytime:
SMan1119@yahoo.com
Take care,
Shelley, Lauren's mom
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