Friday, March 28, 2008

New symptom... :(

Avery has a new "rett" symptom. She has started holding her breath. Mom and I noticed it the other night for the first time. I kind of dismissed it. She is definitely doing it. This morning I could hear her sitting on the couch doing it over and over again.

I am so ready for us to go to Birmingham to get some answers!

4 comments:

Brooklyn said...

I know we already emailed back and forth this morning but I just again wanted you to know that I was thinking about you guys. Every new symptom is hard to swallow. Stay strong girl....
BIG hugs from Indiana,
Kelly

georgiamom said...

I feel like now that Riley got the Rett Syndrome diagnosis all these new symptoms are showing up. Riley does the breath holding thing too - I'm sorry that Avery is starting it now. :(

Rae said...

Your strength amazes me! You and your little ones are always in my heart.

Lisa mom to Siera, 20 RTT said...

Siera is a huge breath holder--I think I told you she can distend her stomach to the size of a woman 9 months pregnant with twins! Avery is absolutely adorable! You have done a wonderful job with this site too! Keep in touch--it will be interesting to find out how much Avery and Siera are alike since they have the same deletion.