Cole's big present from Santa---Thomas Action Canyon
My niece, Bridget and Avery
The only picture of Avery in her Christmas outfit! She was so sick and miserable!
Well all is not well in the Akins' house! Cole has a fever, double ear infection and a sinus infection. Avery has a fever and a really bad cough. I should have taken her to the doctor yesterday too but at the time she wasn't running a fever! It is almost 8 am and Cole is still asleep. He is unaware that Santa has been here! We are going to my parents later this morning to open present and have breakfast. I hope that Cole can rally enough to enjoy his presents!
I was looking back at old pictures this morning. This picture was taken exactly 1 year ago. She has lost so much function in a year. She has NO hand function left. Makes me so sad!
Yesterday both kids had neuro appointments. Cole's was a 6 month check up. Every thing is great! He is exceeding every ones hopes and dreams! He is 48 pounds and just a half an inch shy of 4 feet tall! Dr. Dave said patients like Cole are why is went into medicine!
Avery on the other hand...We decided to put her on a low dose of Zoloft. She seems to have anxiety which may or may not be making her hyperventilate more. She is having drop episodes not seizure related---oxygen related. She is hyperventilating so much that her brain isn't getting enough oxygen so she kind of passes out. We are going to have to start putting her helmet on if we cant get her breathing slowed down. She had 2 episodes while in with the doctor. One time she fell so hard that she got a huge goose egg right at the top of her forehead.
We also have to get some blood work done to check her tegratol level and general blood levels. We are also taking her for an EKG, it is something that I have known she needed but put off for some reason. Some rett girls have whats called long Q-T syndrome that can cause a fatal arrhythmia.
So I was helping Cole get dressed and told him to go get some pants off my bed (I was sorting laundry). I didn't pay attention to what he had on for almost an hour when it finally caught my attention. Cole had on grey sweat pant Capris. Cole doesn't own any grey sweat pant Capris. Upon further inspection I find that Cole has on AVERY'S sweatpants! Yes, my 5 year old fit into my 2 year olds pants! He is now refusing to take them off! He is such a weirdo :)
Saturday we had friends over to watch the Iron Bowl (for those who live under a rock OR outside the state of Alabama, it is the biggest college football game of the year!). Despite the outcome not going our way, we had a great time hanging out. I think there is a future romance between Cole and Madison---they took a tubby together!
(Madison, Pat, Thad, Cole, Rachael, Caroline, Avery, Me)
Cole and Madison
What's that under the water???
