It is October; a time for cooler weather, beautiful changing leaves, and more importantly Rett Syndrome Awareness Month! This year, I am trying to make it “Action Month” as well. Since you are “aware” of Rett Syndrome, I am asking you to help me take action.
As you know, our daughter, Avery, suffers greatly from Rett syndrome. This devastating disease has taken away her ability to walk well, talk, and use her hands but it has not taken away her spirit, laughter, and love. She truly is my personal inspiration. In honor of Avery, I am joining the non-profit organization Girl Power 2 Cure to help fund Rett Syndrome research.
A few facts about Rett Syndrome to consider:
* It is a debilitating neurological disorder that mainly affects girls
* It is the most severe form of AUTISM
* It is the leading cause of severe impairment in females – most cannot speak, walk, or use their hands
* Is caused by a random gene mutation, every baby girl has an equal chance of acquiring
* Another baby girl is born afflicted every 90 minutes
* It COULD be the first childhood neurological disorder CURED!!
Did I just say CURED?
THE CURE IS CLOSE
Yes!! There is amazing research going on RIGHT NOW that has the potential to give Avery back everything she has lost. We are very hopeful for treatments or a possible cure! Of course this takes continued research and Girl Power 2 Cure, Inc. uses 100% of their proceeds to fund the top Rett Syndrome research labs in the world.
To make a donation in honor of Avery and help change the lives of hundreds of thousands of little girls just like mine, visit our family’s personal page: www.girlpower2cure.org/avery and click the “donate” button.
SPONSOR A DRUG
To really make an impact, also consider sponsoring a drug in honor of Avery. There is a crucial project needing funding which will test all 3,000 pre-approved FDA drugs. There could be help for Avery on the shelf just waiting! One drug costs just $168 to test. Click the link on our family page, or go directly to: www.rsrt.org/news/Sponsor-a-Drug.html to sponsor a drug now.Please share this email with all of YOUR friends and family as well – together we have the POWER to beat Rett Syndrome!
With Sincere Gratitude,
Carrie and Thad
Friday, October 3, 2008
Posted by Carrie and Avery at 9:20 AM