Tuesday, April 15, 2008


Yesterday I got a package in the mail from Kelly and Brooklyn. Kelly had sent the "Rett Syndrome Handbook", coloring books for Cole, coloring book and paper and crayons for Avery, and 2 handy-dandy coloring straps(see picture)! We are so incredibly blessed to have them in our lives. Hopefully I can pay it forward to another mom of a Rett angel!

Hugs and kisses to you both!


Brooklyn said...

I hope you have MANY hours of fun coloring Avery!
I want to send one to Riley too, i need to get Erin's address - with the move that might be difficult!

Katy said...

Has she had a chance to use it yet? How fun!

Shelley said...

Hello, I am a mom of a 4 year old with Rett and I saw your link on ClubRett. Avery is beautiful. My daughter's name is Lauren but she was almost an Avery. : ) I love that name! I would love to chat with you anytime. Lauren was dx at 28 months. We think she went through regression between 20-26 months. Since coming out of regression she has only made progress. With the therapies you have in place for Avery, I bet she will do the same. I am praying for you. I remember those first few weeks after we got the official word from the doctor...not fun! But it will get better. E-mail anytime:
Take care,
Shelley, Lauren's mom